From my point of view

That's what our lives all are, an open book. Today I am feeling good, tired as all heck, but good. Ambers ANC is slowly rising and we are all happy and hopeful. Jesse and I are trying to rearrange the house a little more, clean and make things comfortable for us all. Jordan, Ambers fiancée came and reorganized their bedroom here, and made it all nice and cozy for them when they get out of the hospital. We are so excited that she will be coming home soon. Thank you for all of the love and support. Keep it coming. Her coming home is not the end of this journey. It's merely a step in a positive direction. There will be home IV's, a special diet, and a LOT of appointments for blood draws, and bone marrow checks. For three years we will be lighting candles trying our best to scare away this monster. It will be under her bed, at our door, on the porch, in front of our house, down the street getting coffee, then hopefully gone for good. I know it will be knocking. I kno...

Oh the smile I am wearing can not be erased. She's got an ANC of 450 today! If she has 500 for more then three days she can come home! I woke up this morning at 7:30am to my husband smiling and cuddling me. This day just keeps getting better. Thank You Universe!

Five years ago today we found Amber's tumor. "Five Years" by David Bowie has been ringing in my head. I love that song. Today it's just strange. I'm glad we found her tumor. I'm glad I refused to leave the doctors office 'til we figured out what was really going on. I'm not happy my child had cancer I am happy we found it and happy she beat it. I know, I'm sitting here right now on the parent bed in the children's cancer unit as I type this from my cell phone. This is a whole different animal. This is Secondary AML It's strange. Sitting here still after five years. You need to consider that my daughter has had a surgery a year since remission. She spent a good amount of time at Shriners Hospital for Crippled children relearning how to walk, how to use her wheelchair, and how to dress herself. That was just after she was done with chemotherapy. Yet here we are. Five years is a big marker for Ewing's Sarcoma. This would be the ...

So Where do I start? I may be blogging random thoughts through the week. Today is January 6'th..... Five years ago a girl with the last name Couch was being diagnosed with AML Leukemia. Two days after, Amber's tumor was found and we were checked into ten south room one. She and Amber became fast friends her mother Laura and I became the best of friends. We were Mom's stuck in hell together. We cried together laughed together. Played games in the middle of the night with nurses. Had secret jokes. Stayed together even when we weren't in the hospital. She was a soft spoken amazingly beautiful and strong girl. They told her that she had a special DNA strand and that recovery would be easy. A year later she relapsed and in June 2009 we lost her. I say we because she was all of ours. Her love, her laugh, her amazing smile. She shared it with everyone. I'm crying now just typing this. We miss you so much Aimee and we know your standing by Amber because we can feel you...