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Showing posts from September, 2012

Well day one is done

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Jesse and I are home now... It's 12:20am Jordan is with Amber at DCH It was difficult to leave. Jesse and I have been running on adrenalin fumes. I think our first meal today was at 4pm. My allergies are on high, they do this in the fall, on top of that were trying to clean an rearrange our house. We're giving them the bedroom and turning the front of the house into a studio. (granted she'll be in the hospital for a month at a time with just 5 day breaks here and there) Trying to focus on the positives. The straight talking, informative, and caring nurse we love, was her nurse today. This is the woman that was with us when Amber first lost her hair. It was a tough day. I'm glad she was there. She was the one who taught me all about reading blood work and what being neutropenic meant. Today she was teaching all of us about leukemia. It's a different animal. She's got a lot of it in her marrow. They checked her spinal fluid today and also put a chemothera...

Round two

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So Here we are again. This time the demon is called AML Leukemia. They say it's a side effect of all the chemotherapy she got before. This October we'll celebrate four years since her last round of chemo. Or we thought we would. She is a grown up woman. Getting engaged and talking of starting a family. Her wonderful boyfriend just asked her father for permission to marry her. He wants her dreams of motherhood to come true. Now talk is of us moving back in together so we can take care of her. I'm watching my own husband cry-sob is more like it None of us expected this! She had a sore throat a couple weeks ago. Antibiotics weren't doing a thing. By last Wednesday (a week ago) we knew something was awry when the doc said she needed platelets. Back to the oncology clinic she went on Thursday for blood work and CBC's, that day the doc said "I think I know why." Friday they took bone marrow. We knew it would be scary and waiting till today has been tortu...